The Rise of Big Data Registries in Rheumatology – Part 1

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The potential for big data and data registries in rheumatology is immense. In this 2-part series, we’re getting updates and learning about the future plans of some of the big databases and data registries in rheumatology.

Michael George, MD, talks to us about ArthritisPower, a patient-led, patient-powered research registry; Jeff Greenberg, MD, discusses the work of CorEvitas (previously known as the CORRONA), the “built-for-purpose provider of gold-standard real-world evidence;” and Christie Bartels, MD, provides further insight into the American College of Rheumatology (ACR)’s RISE Registry.

Read the full transcript for this episode here.

Michael George, MD, is an assistant professor of rheumatology and epidemiology at the University of Pennsylvania. His research is focused on comparative medication safety, especially infection risk with different immunosuppressive agents.

Jeff Greenberg, MD, is the chief medical officer at CorEvitas and a clinical associate professor of medicine at the New York University (NYU) Grossman School of Medicine. He also sees patients at the Institute for Rheumatic and Autoimmune Diseases at Overlook Hospital in Summit, New Jersey. Dr Greenberg was previously the associate director of clinical and translational sciences in the Division of Rheumatology at the NYU Grossman School of Medicine. Dr Greenberg’s major research interests focus on the pharmacoepidemiology of advanced therapies, including comparative effectiveness research and drug safety research. Prior to receiving his MD degree at McGill University in Canada, he studied economics and history at the University of Pennsylvania. He completed a fellowship training in rheumatology at NYU Hospital for Joint Diseases. Dr Greenberg has been the recipient of numerous awards, including the Physician Scientist Development Award from the American College of Rheumatology (ACR) and the Clinical Translational Research Award from the Arthritis Foundation. In addition, his work has been funded by the National Institute of Health (NIH), the Agency for Healthcare Research and Quality (AHRQ), and the Arthritis National Research Foundation.

Christie Bartels, MD, MS, division chief of University of Wisconsin (UW) Rheumatology and associate professor, is a rheumatologist health services and implementation researcher at UW School of Medicine and Public Health. Dr Bartels’ research focuses on improving cardiovascular health and reducing disparities among patients with rheumatoid arthritis and lupus. Her work is cited in the US cholesterol guidelines and has led to 70 peer-reviewed publications. Dr Bartels has received funding from NIH NIAMS, NIMHD, Rheumatology Research Foundation, and other foundations, and has been an invited reviewer or panelist for the NIH, Centers for Disease Control and Prevention (CDC), National Quality Forum, Rheumatology Research Foundation, and Lupus Foundation of America. She chairs the ACR subcommittee for the Registries & Health Information Technology Committee (RHIT) Rheumatology Informatics System for Effectiveness (RISE) Research and Publications and co-leads the ACR/CDC-funded lupus quality measure project.